Hi Vknusta

Wow, what are the chances of that? It is a pretty rare condition, so for both of you to get it is so unlucky - hope you are both in a good patch with it, and that life is generally pretty good.

One thing I envy is that you must both be able to relate to and understand each other's pain and limitations, rather than the majority of us whose partners (however great they are ) just can't possibly know what we are dealing with.

So how long have you had it for, and have you had any spread? Can either or both of you work? Hope you have some support from family and friends, it must be rough when you are both feeling crappy with it...

Take care of each other, and welcome!

Bram.