Quote:
Originally Posted by mouka
I have not been able to sleep normally in days now. My main problem is that when I am about to go asleep, I would wake up with a huge jolt. When I am trying to relax and go to sleep, a sudden jolt goes to my left or right leg. it is variable. And when I insist and keep ignoring these jolts and try to go to sleep, I wake up in a state of panic.
I haven't been able to sleep normally in days now.
Is this something some of you had to deal with or am I losing it altogether?
|
Mouka,
We are not professionals at diagnosing the disease; only living with it. I know the difficulty of not having a definate diagnosis. I have had an F-Dopa scan at Mount Zion in New York, (the DAT scan does not measure how much dopamine is in the brain, just whether the brain is effective in using or uptaking the dopamine properly. Other illnesses such as dopamine responsive dystonia also are illnesses that are caused by lack of dopamine.) I have also had a genetic test that found 2 mutations in my Parkinson gene, have a sister with PD, 8 relatives on my Dad's maternal side with PD.
It took thousands of dollars to discover this. I doubt my treatment would have changed much except for the DBS surgery. I used the results of the tests to prove DBS would be helpful.
Search this site for information but not to diagnose yourself. That's what the movement disorder specialist are trained to do. Good luck in your search of your symptoms and finding the best skilled Specialist to diagnose your specific symptoms.
Vicky