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Old 08-08-2013, 11:28 AM
anon6618
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anon6618
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Hi there, just popped in and read (parts of) your story.
I cannot tell tou if you have MG, or another disease. It's obvious you've something going on, and like others already said, these diseases are sometimes very hard to diagnose. Just as psychological ones are. The can overlap a great deal, and sometimes even come together and affect one another.

It is very true that, even if it is some psychological problem, that it is real too! And that it is not a question of willpower or something like that, whether it is a psychiatric disease or a neurological. You need help.
Because, besides the fact I personally think your story sounds a lot like MG, let's just say you do not have a neurological, but a psychological problem. One that gives you severe muscle weakness, breathing issues, shaking and whatever more. This is real too, and needs to be taken seriously!
If a patient bleeds, will you only treat it if it is caused by a typical physical disease? And send him home with some valium, lithium, amitriptylin if it is caused by a mental thing and think they just need to talk and "get over themselves".

but the neurologist said they are lasting symptoms and don't just go away. Maybe that's true.

Anyway I wanted to say the following.
I do not have typical MG. Sometimes even on a doc's appointment I start with ptosis, after ten minutes it's gone and at the end it's back again. My talking can be normal or drunk or not even able to make a sound: this can also vary between only minutes!! And not even related to the usual "use the muscle - tire the muscle" process.

My symptoms can be lasting, a simple phonecall can make me weak overall for several days! But sometimes my symptoms fluctuate between minutes.
So they're definitly not always lasting for hours and hours.
I think I must be thankful I'm seropositive!

Btw, of course you have multiple psychological stuff going on, who wouldn't?! Having a problems with your health always comes with psychological issues. So you can survive!

I always think they (you know, GP's and all kinds of specialists except real psychiatrists) give a psychological diagnosis way to soon. Without any good testing, they tend to give (especially woman) diagnoses like depression, conversion disorder, emotional problems etc. The ones I got before the tested my blood on MG? Well, without any testing they dianosed me with depression, eating disorder, anxiety, and even one GP who I spoke once on the phone diagnosed me with borderline personality disorder! Because of the fluctuating symptoms, which of course they thought I was faking (?!)
But, then again: my reumatic disease was "lazyness and lack of initiative" and my thyroidproblems "puberty".

And, if you have one of those diagnoses -whether correct or not- most doctors tend to push every symptom you come with on the little psychological-pile. It's easy to do!

Btw, do not be afraid to try the meds even if it's not sure if you have mg. The first one they try (mestinon) isn't a heavy drug.

Be careful, I wish all the luck!
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"Thanks for this!" says:
bizzymum42 (08-11-2013)