Now I know where to go for the fusion... but heck of a way to have to find out - based on the pain you've suffered

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It is quite unfortunate that it's been only relatively recent (15 or so years) that doctors have taken a closer look at what role SI Joints may have in some people's conditions, particularly considering that the SI Joints are often where some diseases manifest first - such as with Ankylosing Spondylitis.
If you or anyone else takes Amtrak for future trips, I don't know if you might already know this (and it's very possible that you and others do): Amtrak offers a discount on tickets for the disabled and also bumps the sleeping quarter size (not at an added cost for the larger space) automatically as long as it knows in advance

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".... This world wasn't built for people in wheelchairs ...."
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