Sandy, I can sympathize. My world is getting smaller too. And not seeing an end in sight, makes it very hard. The part I miss the most, is that it is summer and I can not even take a vacation or even a day trip to the shore. My days off from work, consist of blood tests, medical procedure and doctor visits.

I have been lucky in that I have not caught a virus since the MG has gotten worse, even though I have been on high dose steroids for 4 months. I am kind of dreading the winter with icy sidewalks and infectious coworkers and kids. When my MG started, it would wax and wane, but I have not had a good day in a long time. It makes me wonder when I will see one again.

Did you ask your neuro about a long-term non-steroid anti-inflammatory like cellcept? I think I am going to ask my GP to up my Effexor (anti-depressant). I am feeling extremely exhausted and stressed since they started to wean me off the steroids.

Hang in there, the heat of the summer is almost gone and we should feel some MG relief soon.
kathie