Quote:
Originally Posted by Dianna Wood
He wants me off the DBS because they do not understand how it works; whereas, the drugs are better understood and easier to work with. He insists my symptoms are the same as they were when he started turning them down. I feel I am slowing down and having muscles seizing up constantly. He said it was what he expected. I plan to look for bad research about the Deep Brain Stimulator. It wouldn't be the first time Medtronic was caught with their pants down. Sounds paranoid, I know, but pardon me If I can't help feeling paranoid, its a part of PD.
vICKY
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Vicky,
Hang in there. Have you had the DBS for five years? Do you still take meds?
I am not quite sure I follow why your neuro wants you off DBS...is he afraid that after 5 years it may harm you? The very fact they do not know how it works is one of the key reasons DBS is a last resort for me. Levodpa is the devil we know as the saying goes...
Laura