Wow, what you've been through. I'm sure by now you've read everything you can find including this forum. If you haven't already find articles about RSD/CRPS by Dr. H. Hooshmand. He has an excellent one specifically about the spread of this awful disease.
I would get a second opinion before I had ANYMORE surgery.
I went through the trial SCS and was really scared then, but am still undecided whether to get the permanent.
Can any Dr. really give a certain answer given all the unknowns about this disease? Sounds like they've already done you a diservice.