Thread: Surprised by NIH screening.
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Old 08-10-2013, 06:40 AM
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reverett123 reverett123 is offline
In Remembrance
  
Join Date: Aug 2006
Posts: 3,772
15 yr Member
reverett123 reverett123 is offline
In Remembrance
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Join Date: Aug 2006
Posts: 3,772
15 yr Member
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Laura=

Congrats! We're right behind you!
Was an endocrinologist on the NIH team by chance?

And my own eperience with requip was to quit cold turkey rom 32 mg daily. I wonder what that says.....

Rick

Quote:
Originally Posted by Conductor71 View Post
Vicky,

Hang in there. Have you had the DBS for five years? Do you still take meds?
I am not quite sure I follow why your neuro wants you off DBS...is he afraid that after 5 years it may harm you? The very fact they do not know how it works is one of the key reasons DBS is a last resort for me. Levodpa is the devil we know as the saying goes...

Laura
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000.
Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well.
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"Thanks for this!" says:
Conductor71 (08-10-2013)