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Old 08-10-2013, 08:25 AM
"Starr" "Starr" is offline
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Join Date: Apr 2012
Location: Ottawa, Ontario, Canada
Posts: 312
10 yr Member
"Starr" "Starr" is offline
Member
 
Join Date: Apr 2012
Location: Ottawa, Ontario, Canada
Posts: 312
10 yr Member
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My fall happened in Feb 2012 and in around March, I started with a horrible all over body rash with awful itching (I posted here about it, as I was convinced and still am, that it was related to my fall) and was on high doses of prednisone several times over the next few months.

As long the the dose was over 40 mgs and the course was longer than a week, I noticed improvements. The best improvements came between 40mgs and 100 mgs during my month long course, I almost felt normal, my headaches were pretty much gone and my fatigue had lifted, I felt like me.

As soon as the tapering dose got below 40mgs, it all started to creep back and of course once the drug was totally out of my system, I was right back where I started. Eventually the rash and itching went away and didn't return.

When I told my rehab doc about my experience, (I didn't get into the program until July and that was about the time my rash and itching was just about over) he said that prednisone will often help temporarily, but isn't a permanent fix or cure.

He admitted he will very occasionally prescribe a short course for his TBI patients if they have a special occasion to get through, like a child's wedding or something, but he cautioned that sometimes prednisone also causes aggression in TBI patients (maybe regular ones too, I don't know?) and can cause things to go horribly awry also.

Now at my appointment yesterday, he prescribed at beta blocker and said if this doesn't work, we *may* have to consider a course of prednisone to see if we can break the headache cycle that I've been experiencing for 1.5 years. I've not had a break in my headaches since that last course of prednisone, over a year ago. Not one single moment.

If you google prednisone and migraine there's a variety of information regarding that. But in my own experience, all my other symptoms went away with the prednisone use also... I honestly felt like me... which does give me hope that somewhere in there, I am still there.

Starr
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