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Member
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Join Date: Sep 2012
Location: Newtown, PA
Posts: 709
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Member
Join Date: Sep 2012
Location: Newtown, PA
Posts: 709
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Thanks Sandy, It seems cellcept is the the preferred non-steroid immunosuppressant with Imuran a close second for MG. Unlike steroids, it can take months to feel relief.
I think I am going to try a new neuro. I do not feel I have a satisfactory direction in the treatment of my MG.
Prednisone worked well with me too until I started to wean off. I do not like the "moon" face and worry about the osteoporosis. Work does give my life a routine and something to focus on besides my MG. But I think I will be cutting back hours before the winter sets in. I had a terrible fall and ended up with my leg in a brace last winter.
I still want remission too! My neuro does not think thymectomy is warranted unless your scan show a thymoma. Most statistics say a thymectomy helps most patients with or without a thymoma. Did anyone hear go to John Hopkins and have a neuro that believed in the benefits of a thymectomy? If so, please let me know the Drs name.
They found nodules on my thyroid and I go for a needle biopsy next Wednesday. My gastro who originally thought I had Crohns, said the Celiac and Crohns test were negative. She thinks the rapid bowel transit is due to lupus or mixed connective tissue disease and is sending me back to the rheumy.
Thanks
kathie
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