Thread: Any ideas?
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Old 08-10-2013, 07:16 PM
ginnie ginnie is offline
Elder
 
Join Date: Aug 2010
Location: Anna Maria Island Florida
Posts: 6,278
10 yr Member
ginnie ginnie is offline
Elder
 
Join Date: Aug 2010
Location: Anna Maria Island Florida
Posts: 6,278
10 yr Member
Default Hello lgr

Welcome to Neuro Talk. I am sorry to hear of all the symptoms you are having. I wish your appointment was sooner than 2 months. I also hope that you can find a physician, that will listen to all that is going on. If you think your doctor is being stand off ish.....it may be time to find another. You need to have someone in your corner, now, not just two months from now.
I have PN. I can relate to some of what you are experiencing. However since you think this is spreading, finding a Neurologist that knows about PN and CPRS, RSD, would be advisable. Your PCP will know if the Neurologist you are going to see, has experience with these conditions.
Keep a journal of all your symptoms, On a calender is just fine. That way all that is happening you won't forget when you see the doctor. It is also a good idea to bring a friend. Sometimes with a person with you, the doctor tends to pay attention more to you. Also if he says something you miss, your friend will be a back up.
If some places are more painful than others, perhaps your PCP would prescribe lidocane patches or a compound to take the edge off. You may need a pain specialist as well. Research all you can. I see a physiatrist, who happens to specialize in pain. She treats the "whole" person. Avoid all chiropractic as you don't want to make any of it worse. A neurologist should clear you, before you do that OK? Have your B12 Checked. Many people who have PN experience low B12. I take that and a number of other suppliments, and have improved over the last year. None of us are doctors here, but there is good support here, and good ideas to help. You want the A Doctor, not the D student for dealing with these kinds of issues. Research the physician. Get a second opinion too, no matter what the outcome is. It is really important to have a good support team, both at home and with your chosen physicians. I have three involved in my care, monthly. I don't know what you have, but you present with some neurological pain. I know how bad it hurts too. Please let me know how you do. Others will be along to add their ideas. I will keep you in my thoughts and prayers. I also hope a solution can be found to ease the pain. ginnie
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