I just wanted to tell you since our stories are somewhat similar. I have two scs's. Thoracic at T8 originally then revised to T9, and C2. I also had a seroma at the left hip battery site. I do have some burning problems at both battery sites. I assumed that it was due to them being close to the skin. I am skinny (5'7 around 112-115 lbs). So I have been told there isn't much padding to guard when you bump things so I expect a certain degree of pain. There was murmur of spread, no confirmation then.....
I saw a neuro muscular specialist at UT southwestern that confirmed I had full body RSD. She concluded I had it in my back, incision spread. Thoracic spread that was due to the surgery and lumbar spread due to a myelogram. Doesn't seem to be any cervical issue yet. She said to expect it. she also did nerve biopsies (extremely painful) and I also have small nerve fiber neuropathy, peripheral neuropathy, seizure disorder of unknown origin, and optical neuropathy.
There was a mention of moving my left hip from hip to abdomen, due to recent discoveries we are not doing that.
Anyway, that was my story. So I did get back spread, and my doctor did give me papers on systemic rsd and e other neuropathies. It's all treated the same way. Pt, OT, meds, the scs's, and basically just management.
On the plus side, I did get approved for ssi on the first try.
I hope this helps! Private message me or you can send me a message and I'll give you my number.

TK