Thread: Surprised by NIH screening.
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Old 08-11-2013, 11:20 AM
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indigogo indigogo is offline
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indigogo indigogo is offline
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Quote:
Originally Posted by pegleg View Post
Until we have some research proven biomarkers or diagnostic tests for PD, it will never be valid assessment measures. Most of the main assessment test of every trial design uses the UPDRS. ( see this information - http://www.alz.washington.edu/NONMEM.../VER1_2/b3.pdf )
It has its problems but it has been used 20+ years.

Most all research testing is based on observed performance, leaving too much chance or rater bias (subjective opinion). Our concerns are real when it comes to accurate diagnosis.
Peggy
Amen Sister!! The whole thing is a big mess. Thank goodness MJFF decided to invest 50 million in their Parkinson's Progressive Markers Initiative (PPMI). The early data is already being shared worldwide. It is open for use among all researchers. Hopefully, we will learn more about subtypes, and develop an accurate test for diagnosis.

How can we cure/fix it if we don't know what it is?
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