I am so sorry for what you are going through. I can't say I understand because I have never experienced it. IMO I agree with the poster who said to try a 2nd opinion- it wouldn't be a bad idea, it's usually a good idea. Whatever happens, i hope you keep talking to people or posting, there seems to be a lot of really caring people here! It is a loss, and you are grieving it. Ignore the idiots, and listen to the people who care. Grieving a loss is personal & everyone deals with it differently.
To the second person who went through this, I am sad for you as well. I think the 2 of you experiencing this may be able to help each other. No one can truly understand unless they've been through it. I'll be thinking go both of you and wish I could say something that would help; all I can really do is keep you in my thoughts and prayers.