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Old 08-12-2013, 04:14 PM
heb1212 heb1212 is offline
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Join Date: Apr 2012
Location: Upstate New York
Posts: 107
10 yr Member
heb1212 heb1212 is offline
Member
 
Join Date: Apr 2012
Location: Upstate New York
Posts: 107
10 yr Member
Default Would You Mind Elaborating?

Quote:
Originally Posted by mrsD View Post
The reason is that some PNs are caused by disorders
Of the bone marrow and blood. These antibodies are peptides
that thicken the blood so it cannot circulate well and nerves
And other tissues suffer.

Some of these disorders are treatable and others not.
Treating then may reverse damage or at least prevent
progression of nerve damage.
Mrs. D... wow. You always add such interesting info. I find what you said particularly interesting because the onset of my neuropathy started soon after I had parvo virus b19... a virus that replicates and can harbor in the BONE MARROW and blood. Two and a half years later, I still have parvo virus DNA in my blood and a high IgG antibody titer. I've consulted doctor after doctor as this has affected me systemically and in more ways than "just" the neuropathy, and there isn't a lot of understanding as to how very difficult this virus can be on an adult. In children, it's called Fifths Disease and is a mild flu-like virus. I haven't been able to pin down a decisive opinion as to whether the DNA represents "dead" viral particles or an active, persistent infection. In any event, there isn't any treatment protocol, so I think I'm stuck. Anti-virals don't work. I tried two rounds of IVIG and they didn't help. I'm left to wonder if it just wasn't a sufficient amount, but getting insurance approval for further treatment is out of the question. I have levido reticularis with a skin biopsy indicating a mild but chronic inflammatory infiltrate and a moderately elevated sed rate. ANAs all normal... so far. They did a cryoglobulemia and IgG, IgM and IgA immune function blood test, and that was normal too, and maybe that's what you were referring to regarding the thickening of blood. Oh, I just so wish the doctors could help figure this out. Thank you for your efforts to help and educate!
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