Hi from Western Australia. I am looking for someone who has Lems. I have been diagnosed now for 6 months . I have Infusions of Ivig two days every month and did not respond to mestinon at all well. Did much better on 3 4 Dap. Progressed to Imuran which made me quite ill and am now commencing an alternate drug Mycophenolate Mofetil. Early days yet. I know there are lots of support groups for. Myasthenic Gravas, but not Lems. Hope to hear from someone.