Debra,

Thanks for your response. I'm sorry we share so much in common =( i wish it was winning lotto tickets instead.lol

Currently, I'm not on much. Just allergy meds and coq10 because i am defiencient. However i have been on florinef, stopped because my hair fell out and kept ending up in the hospital with hypokalemic crisis, and really it did no good for me anyways. I've tryed every ssri and snri, midodrine did nothing. So now I'm waiting for my new neurologist to call me and hopefully get me on something for the mg. I believe I'm having lung involvement and hurt so bad i can't leave the house (which makes the pots rile up). I'm guessing mestonin will be my next med.


Im really in limbo right now and was told i have mg three weeks ago and still waiting waiting waiting for a follow up...ugh

Have you had any success with meds? Did your conditions start at separate times for you?

Take care ~bear