I have had great success w/ IVIg and mestinon and some success w/ prednisone. But currently, I have started on Rituxan for immunosuppression because I have at least 3 autoimmune conditions that may benefit from it. It is too early to tell yet if it is going to work.

MG started first and then POTS a couple years later but Sjogren's may be around the same time as POTS but not sure. It is more elusive. Neuropathy is sometime after MG too.

You should call your neuro and request a trial of mestinon immediately. There really is no excuse that the doc could have to wait, since you have positive blood tests.

When you say that you have "lung involvement," are you saying that you are having trouble breathing in some way? If so, that can be an emergency. Can you take in a deep breath? When you do, how high can you count? I have respiratory involvement and have been to the hospital way too many times...Please describe your experience so that I can help.