Bny806
Sounds like u have pots! I wonder why they weren't definate on the diagnosis. I've have autonomic dysfunction since i was a toddler. pots developed last year the same time all my other symptoms hit. So i don't know what caused what or if its a coinencedence. I do know it stinks either way. Lems would be a perfect fit for me except blood work insists its mg. My eyes are involved too! Ice never meet anyone else with that! My ttt was a gross fail after 6 minutes up. My legs were purple and i couldn't breath. As a kid i failed eight of them so obviously a lifer with the auto.issues...yuck i feel for u. Ivig its something im nervous about but its something the doctor is thinking about for t he pots sheet the mg is stable.

Doriandean,
Its nice to meet you. I Hope we can both find our feet again. This forum seems wonderful. =) i joined a day ago and am already finding it beneficial, both emotionally and educationally. Its nice to not be alone. Take care ~bear