I know how frustrating not having a definitive answer can be...I was dxd in '08 after being told my sxs were from other things.

Even before I was dxd, I was denied twice for long term health care (nursing home or at-home care, costs ensued, etc), because I had sxs that resembled MS...they can deny us coverage even if we don't have a concrete dx!!

So try to get that kind of insurance before you get a dx of any chronic disease.And then all you can do is get enough sleep, eat right, try to get some daily activity, and live your life even as you keep a log of your sxs and questions to ask at your next doc's appointment.

Know that we are all pushing for you to find answers, and that we are all there for you. And that this is a really great place for info, laughs, hugs and support...I'm blessed that I found this great site!