Quote:
Originally Posted by hamisa
Thanks! I read your story... yikes 20 yrs I cant even imagine.... I hope you find the relief you need soon! Trust me I understand the merry go around of doctors. Im currently 9 weeks post-op from a Transmastoid Mini-Craniotomy (inner ear/brain) surgery. I was on bed rest the past year, saw 11 doctors in 9 months and ending up self diagnosing myself with 2 rare vestibular disorders. Strangley, after reading through my CT/MRI reports I started wondering if my arm/shoulder pain was actually cervical or TOS. Then 2 doctors mentioned it to me. I read thru a paper by Dr.Sanders and I felt like he was explaining my pain to a T. I just dont know if I am physically/mentally ready now to take on another search about the pain. The 3 arm surgeries left me depressed and the recent serious vestibular problems have drained the life out of me. Although, thanks be to God I am almost 90% recovered. Im tired of doctors and tests and finding out the doctors were wrong and I was right. Now I know why they call it "practicing medicine". I feel like its either find out whats wrong or chop the arm off cus Im tired of the pain. Im only 37, have 2 daughters, work but this pain has left me feeling like half the person I used to be. I always devide my life into before and after pain. Thanks for listening.
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Wow, thanks for sharing your story with me. First, I'm so sorry for all the things u have been through. I'm 41, and have been dealing with this through my young adult life. I've had to stop school, because it was hard to write. I've been fired from jobs. The list goes on and on. Yes, I do agree, they are practicing medicine. U don't know what some of the doctors have put me through. But, it's a blessing to hear your story and others, because when we think our situation is bad, someone else is dealing with a worse situation.
Both of my arms are affected by this TOS. I was told about a month ago, if I don't have surgery soon, I could lose both arms. But I'm not afraid, my life is in the LORD's hands. Just like yours. Your daughters are seeing a fighter, and u are a blessing to them. Trust me, I know it's frustrating. I've been saying and thinking about the same thing u stated. So I know what u r going through. Just know, we may not understand it right now, but there is purpose behind all of this pain we are going through. Just keep fighting, and keep holding on. Keep fighting and hold on for your daughters. They need u.
Thanks again for sharing your story. If u ever need to vent, I'm here to listen. May GOD bless u and your family. I'm praying and believing for your healing.