Dear SongBird-you don't know me, I'm just a new member with this group but I have been following your posts and my heart truly breaks for you and for your husband, for your daughter as well. You are suffering such a great loss on top of what you already suffer with our disease. I am just keeping you and your family in my prayers - please try to be as strong as you can and lean on everyone around you. Give yourself the gift of time to grieve this irreplaceable loss of this child you already treasured in your heart of hearts. Please be well and know that you are in the prayers of so many. Please take care of yourself!