Quote:
Originally Posted by made it up
If you happen to read this Neil would love to know some more details eg do you have a tremor, have you had DBS, how much levodopa do you take every twenty four hrs, do you get much off time or dyskinesia?
I live near you and while I didnt see the 9 episode when it was aired thanks to Soccertese I just saw it online.
Thanks and enjoy the walkathon.
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Neil here. I hope this responds adequately.
Remain in control, never accepting that the opinion of an “expert” is true if it isn’t consistent with your experience. Experience must be real (empirical) not assumption. For example, don't assume you are not capable of something unless you have given it a go and found it to be beyond all possibility for your ability. (I accept that my days of playing the piano are over. I've tried many times. My fingers are too stiff and don't respond.)
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My medication
Stalevo 200mg levodopa / 50 mg carbidopa /200mg entacapone 4/day
Sifrol (Mirapex in U.S.) 0.75mg pramipexole hydrochloride 1/day
Azilect 1mg rasagiline 1/day
My 10 minute address to the Parkinson's Australia conference in 2012 sums up my experience of hard physical training despite PD.
Note: I don't "exercise for Parkinson's" nor in any group of people with PD.
All the best
Neil