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Member
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Join Date: Sep 2012
Location: Newtown, PA
Posts: 709
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Member
Join Date: Sep 2012
Location: Newtown, PA
Posts: 709
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Thanks for this. My tinnitus and hyperacusis has been nearly constant since my surgery that exaccerbated my MG 18 months ago. The tinnitus went a way for 1 day after 5 days of IVIG. Since then I have had a few hours here and there tinnitus free. But at night, it gets so loud it is deafening and I can not hear my daughter or the TV.
The hyperacusis really bothers me at work. I can control the volume of most things at home. But people talking outside my cubicle, or cell phone tones etc are severely distracting at work. I find it hard to concentrate and get anything done. I just want to put my hands over my ears. It does not bother anyone else at work. Even a few co-worker with louder than normal voices, I find irritating and there is nothing I can do about this symptom. At least the muscle MG weakness gets better after a few hours of rest in the recliner, but the tinnitus and hyperacusis is unrelenting.
kathie
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