Good plan to try things out - you WILL find things that help to ease your symptoms a bit and make life easier...

Try asking your OT for a bed frame - it lifts the covers off the end of the bed, so that the sheets etc don't touch your bad bits. I put a pillow at the end of the bed to lift the quilt up - I sleep a lot better these days (mostly) lol!

The textures desensitization can be difficult, but it is worth persevering, it can make a real difference to what clothes etc you can tolerate. But....if it makes you very sore, then you should dial it back a bit until your skin accepts the texture without pain. It's a delicate balance between increasing tolerance and not hurting yourself more.

Good luck with it all...

Bram.