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Old 08-22-2013, 06:07 PM
4-eyes 4-eyes is offline
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Join Date: Aug 2009
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4-eyes 4-eyes is offline
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Join Date: Aug 2009
Posts: 642
10 yr Member
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Oh, wow, that doesn't sound good at all to me. So sorry.

In my opinion, the "every other day" part came too late. My neuro's office has patients go to every other day when they are at their highest dose, as soon as the symptoms become stable. That immediately cuts side effects in half, and makes the wean much easier. When done when the dosage is high and the patient is stable, it just works better.

You have been noting withdrawal type (and symptom re-emergence) since very early on in your wean. Since you have continued the fast wean, your body is really stressed from both the wean and the re-emerging symptoms in addition to the bad scene that happened with the IVIG. This potentially a recipe for disaster.

Are you happy with your neuro? Is this something you can talk to him/her about, or make an appt to go in and discuss? I will add that it's not unusual to feel cruddy for a few days following any reduction in pred, so if try and ride it out, it "may" get better (or may not.)

I hope you find some relief soon.
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"Thanks for this!" says:
pingpongman (08-22-2013)