Junior Member
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Join Date: May 2011
Location: Champaign, IL
Posts: 47
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Junior Member
Join Date: May 2011
Location: Champaign, IL
Posts: 47
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weaning pred
WAY TOO FAST!!!
The highest dose I had was 30 mg/day. To wean, the neuro took me down to 25 for one month, then 23, then 21, then 20, one month at a time. Then 18 and 16, one month at a time, and told me to stop there. All of that was tolerable, with just a couple of days of not-quite-rightness. I went down to 15 after another month by my own judgment, then 13 after 2 months. I just want off this drug! But I paid for it with the last two decreases, with head to toe pain for a few days and feeling like I had the flu in general. My neuro didn't seem to pleased I had taken it on myself to do that, but I'm sick of prednisone. I'm now about a month since that decrease to 13, and no more ill effects and the MG is holding its own. Anyway, it seems to me that your decrease doses are extraordinarily far apart!
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