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Old 05-17-2007, 11:51 AM
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jeanb jeanb is offline
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Join Date: Aug 2006
Location: sonoran desert
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15 yr Member
jeanb jeanb is offline
Senior Member
jeanb's Avatar
 
Join Date: Aug 2006
Location: sonoran desert
Posts: 1,352
15 yr Member
Thumbs up Lloyd - CEP1347

Lloyd,

THank you for your story - I participated in the same trial. And we're probably in the follow-up trials as well.

The first neurologist I went to didn't know about the CEP trial either. I just asked him if I met the criteria. I did, joined the trial, and then found a movement disorder specialist (MDS). Unfortunately MDSs are not always available to PWP. I was lucky in that regard.

It's too bad GPs are so uninformed about the importance of clinical trials!!! They are part of the problem, that's for sure.

Good luck to you!
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This isn't the life I wished for, but it is the life I have. So I'm doing my best.
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