Lloyd,
THank you for your story - I participated in the same trial. And we're probably in the follow-up trials as well.
The first neurologist I went to didn't know about the CEP trial either. I just asked him if I met the criteria. I did, joined the trial, and then found a movement disorder specialist (MDS). Unfortunately MDSs are not always available to PWP. I was lucky in that regard.
It's too bad GPs are so uninformed about the importance of clinical trials!!! They are part of the problem, that's for sure.
Good luck to you!