I am not full body, although mine did spread to my left side. What you are enduring sounds horrendous, and I can only say how much I admire your fight against this cruel disease that causes so much pain and disability.

I hope you manage some slightly better days, and have some things to keep your mind occupied during the times where you can concentrate. I know distraction helps me so much when things are bad, but of course when the pain is very deep I find it difficult to think of anything else.

All we can do is to keep trying, and it sounds like you are doing that every minute. Keep going

Bram.