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Old 08-23-2013, 01:36 PM
tkayewade tkayewade is offline
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Join Date: Jun 2012
Location: Texas!!!
Posts: 326
10 yr Member
tkayewade tkayewade is offline
Member
 
Join Date: Jun 2012
Location: Texas!!!
Posts: 326
10 yr Member
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Unfortunately, I have full body and some of your symptoms sound familiar. I have bladder problems. (interstitial cystitis), digestive problems (loss of appetite, heartburn, reflex, burning belly pain, etc), I haven't lost teeth, but I have extremely sensitive teeth and they are weakening quickly.i have had two seizure episodes, optic neuritis, and of course excruciating back burning pain. My scs does not cover. I have balance issues that make walking very difficult. I usually just use a wheelchair. Oh and noises really bother me.

My treatment hasn't changed much. I keep taking the same meds and hope for the best. I think I may have to up my topomax due to myoclonic seizures and constant burning pain. I use music for oping and read. Sometimes it helps; sometimes it doesn't!

Hang in there! Feel free to message me! It's very hard to be systemic.

TK
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