What do we do if we think some research priorities are wrong?

Advocacy is one route: attempt to change the system or, at least, the targets of the system. My thanks go to anyone who goes down that route.

But, there is another route: we do the missing research ourselves.

We have the skills. At the moment of diagnosis we don't suddenly lose our skills as tool makers, doctors, chemists, engineers, managers, lawyers, mathematicians, computer programmers etc..

We have the time to learn new skills. We're likely to have PD longer than most researchers spend on PD, so we may not be experts at the beginning, but we should be after a few years.

We have some of the technology. In particular, we have computing power.

We have 24/7 access to data, ourselves.

We have the motivation to find improvements.

We have obvious targets: exercise, curcumin, placebo, etc..

Just image what 10,000 citizen scientists could do.

John