Quote:
Originally Posted by ChaucerFan
Yes, ChloeCasey, I have had this--or something pretty similar! In 2007 I had a thoracotomy for a benign neuroma (schwannoma). Afterward I developed mononeuropathy at the site of the incision. Finally got Rx from a pain doctor for Nortriptyline, which helped quite a bit--I stopped the Nortriptyline after about a year because the pain was tolerable. But then about six months ago I started getting PN symptoms--one foot, then leg, then other foot, then hands/arms, even face. Officially diagnosed as "idiopathic." The neurologist said there's no connection with the post-surgical nerve damage and nerve tumor (which was ALSO "idiopathic). But I can't help wondering, and my thoracic surgeon thinks there might be a connection. Now I'm getting relief (and pretty good sleep) from combination of Nortriptyline and Gabapentin, but I'm worried about the future. It's good (in a bad way, if you know what I mean) to learn that someone else has had this experience.
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Chaucerfan
Curious to know , did you have prior surgery that caused the Neuroma or did this just develop..... I really think my situation could be a Neuroma forming as a result of 3 surgeries I had and all the complications that have occurred since.
I have done so much research that sometimes scar tissue/neuroma formation can occur when nerves heal...I really believe mine did this at the incision site (there is alot of sensitivity/pain) since I had 3 surgeries (10 days apart), had MRSA in Hospital and then developed MONO 2 months post surgery......my whole system got messed up?!!
Will see what the Neuro has to say .....as far as the surgeon and any other doctor I have seen, they have either said there is no connection or just don't want to go against the surgeon, etc. I don't have a medical degree however I have a lifetime knowing myself and I see that it certainly could have a connection.....never had any of these "post op issues" prior to surgeries.
Look forward to anything that you find out in your situation