Quote:
Originally Posted by ChaucerFan
I guess our situations ARE different because my benign tumor came first -- for unknown reasons; then the incision to remove it, which went in between my ribs, damaged a DIFFERENT nerve and caused the neuropathy.
You certainly have had more than one human being's share of problems -- three surgeries in a short time, then MRSA, then mono! Yikes!
But I am like you in wondering how these things can be totally unrelated. I mean, the nerve tumor was basically overproduction of myelin. And now this mysteriously caused neuropathy seems to be (in part) demyelinating. I have an appointment in early October with a PN specialist at the same hospital as the thoracic surgeon who removed the nerve tumor. Maybe they could put their heads together? And maybe another user of this board will have had a similar experience. Have you considered starting a new thread that explicitly refers to the surgery / neuroma connection?
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Thanks so much for your response & Yes that sounds like something I may do.
Like you, I believe that there likely was damage to Other nerves especially with the potential of encountering nerves 3 times that are so sensitive when they are stretched, etc.
In fact when they went in the 3rd time they prepared me for having a Thoracotomy as I had to have the 2nd & 3rd surgeries for "Chylous Lymph Leaks" and when the 2nd surgery did not resolve the problem they thought that the leak could be in the Thoracic Duct however, the leak was ligated thru the same surgical site previously done. I understand there is greater chance for nerve damage and more pain because of the whole incision/rib access when a Thoracotomy is done.
I had phrenic nerve damage with elevated diaphragm which did not resolve till 20 months post op, Long thoracic nerve damage which resolved more quickly and lastly, Horner's Syndrome which has not resolved and is permanent (Droopy eyelid, pupil will not dilate on surgical side and I don't sweat on surgical side either. To me, all of this and my other symptoms along the way points to nerve damage/neuroma?/PN for sure.
This is why I believe that it is pretty certain that what is going on now has to be a progression of the nerve damage and likely PN. It is just way too coincidental. Because my surgeries were out of state and not wanting to return there I just may have to find a PN specialist close to home if I don't get answers from the Neuro.
chloecasey