Quote:
Originally Posted by tayla4me
Hope you are starting to improve. I have been away from the site for awhile and am just catching up.
I used to faint from my pain but the meds I was on were also causing low blood pressure which didn't help.
Are you taking an anti-epileptic drug, it may help the spasms and jerkyness, I suffer terribly from them but do get some help from Clonazepam.
Thinking of you
Tayla  |
Yes, I am on anti-epileptic drugs: Lyrica and Neurontin.
Quote:
Originally Posted by mollymcn
Big hugs (the non-hurty kind). You are good and you are brave to try something new to fight for your legs. It is so hard to know what to choose when the choices are so not-great. When will you get your first blocks, do you have an appointment yet? and for the pasting out ... everything other cause has now been ruled out, right? (Vitamin B-12, blood pressure, etc etc). Pain does such awful sneaky things to our brains and bodies...
xxxxxxxxxxxxxxxxxx oooooooooooooooooo
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I will start the blocks the week after next! I am so happy that I am going to be able to get them, though I really wish that I could've gotten them sooner.
I chose to start with my legs since they seem to be the worst out of all of my body, at the moment. I really want my legs back the worst, I think! I want to be able to walk, go outside at times, go shopping, etc. without pain from walking! I cannot stand unassisted anymore, and that is really hard on me, I have basically no independence- I cannot go anywhere!
Another question- anyone have weakness from their RSD? My legs seem so weak, and my dr thinks that that may be what is going on and not "muscle guarding". When I try to walk I rock back and forth, my legs are just so shaky!
Passing out: My Dr did check my blood pressure, and it was actually normal standing and sitting. I haven't been tested for the B-12 deficiency, but will look into it. My Dr feels that it is purely pain related and that once I get through this bad flare up things will improve. I am currently taking the pain medicine along with the other medication I am on, though I don't usually take pain medication (just using the ant-depressants and anti-seizure medications), and it has decreased some of the passing out. I have thought about whether this could be seizures, but I really don't think so (though I know it is possible even if you are on anti-seizure medications), as the pain is worst in all different areas when I pass out (it is not like I pass out with a sharp pain in my head every time I pass out), -sometimes the pain is worst in my back when I pass out, sometimes it is worst in my chest, sometimes in my leg, etc, etc, etc...
Thank you so much for the support, prayers and hugs!! I appreciate all the kind, caring words you all send!
Sending my Love,
Vanessa