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Originally Posted by cljm06@aol.com
Hello anyone out there. I am new to this site and this is my first post. Not sure where to begin. I have desperately been searching for any kind of help only to find none. Even if there really is no resources out there, I would truly appreciate just to be able to chat with anyone. My husband was involved in a terrible/catastrophic injury motorcycle accident over 2 years ago. Among many other injuries, he suffers Severe tbi and ptsd. We live in Florida and have no family or friends locally (or any that have taken the 2 hour plane ride throughout this time to provide any kind of help or support of any kind). I have been his sole caregiver since the accident, working from home since his accident desperately trying to hold things together but failing miserably - everything has just turned into an absolute nightmare disaster and we are losing everything we have worked our whole lives to build. Please don't think I am complaining, I am so very greatful to still have him in my life and would do or give anything for his recovery, just seem to be failing miserably at it. I have taken him to so many dr's trying to obtain the proper medications and treatments he absolutely requires for his "mental health/well being" only to continuously be given rediculous excuse that "they have an office policy not to provide certain medications to control extreme outbursts of anger and violence +continuouly destraught despite being told they had no problem continuing the medications the trauma, rehabilitation hospital and neurologists all agreed and insisted must be continued. Being completly alone, overwhelmed and no idea what to do or where to turn. I was extremely sick prior to my husbands accident and have gone ever since without any of my necessary medications or treatments I require - its impossible enough to keep up with his and try and keep my job with the rest of normal day to day needs impossible to keep up with creating just more incredible stress. No idea if anyone may have any suggestions or just even want to chat but would so very greatfully appreciate it.
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My Heart goes out to you cljm. I was care taker for my mother for 3 months when she had liver cancer. It was not only physically draining but it was mentally draining. I've never felt so alone. I understand your frustration and I only did it for 3 months. Well, my Mother in-law was much longer but we eventualy put her in an assisted living place. I don't know the answers for who you should contact. I think Ginnie did a good job of that. But, I do know somehow you need some time for yourself. Even if it's a couple hours. That is so important to relieve your brain and body from what you face from day to day. Even if you just go grocery shopping and for once you don't have to rush to get home. God Bless you and your Husband. God is with you and I will pray for you that some kind of help will fall into your life... Hugs to you!!! Blossom25