Quote:
Originally Posted by N2Mischief
I never related it to when my weakness is worse. I will pay attention now and see if they coincide.
I told my doctor about my weak cough, it worsens when my mg worsens. He said they weren't related, that it was probably allergies. Then I read it is common with MG to have a weak cough.
It is so hard to know sometimes what is MG and what isnt!
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I think it is a good idea just to observe what happens to your sound sensitivity whilst your other muscle weakness fluctuates. I am interested to read everyone´s observations. And I think its amazing that at least one person´s symptoms here were temporarily alleviated with IVIG.
I remember mine fluctuated but in hindsight only very subtly and insignificantly during the worst phase of myasthenia which lasted 3 years. At that time I didn´t even consider it was related to the other weakness. It was only later with almost 100% resolution of symptoms that much to my amazement that it too began to disappear over the course of a few months, and like I said earlier, reappear again during a flare up along with the other more usual myasthenic symptoms.
I think back to all the hearing specialists I have seen who told me I can hear very well (!) and not to avoid sounds - to basically just
grin and bear it – I now know I would never go and sit out in scorching heat to exacerbate my DV, general and bulbar symptoms and so will I, in future, likewise never allow for a constant tsunami of loud sounds to reach my precious ear muscles during any flare up ever again! I will conscientiously protect them with the high quality filter musician´s earplugs at certain times where I think appropriate and on select days/time of day with greater muscle weakness.
PS. Yes, your weak cough may very much be a part of it – I do hope you have a neuro that knows about your symptoms and is competent in MG. I personally at least think your doctor needs a thorough evaluation on his skills related to fluctuating neurological muscle disorders!
Anacrusis