I think it is a good idea just to observe what happens to your sound sensitivity whilst your other muscle weakness fluctuates. I am interested to read everyone´s observations. And I think its amazing that at least one person´s symptoms here were temporarily alleviated with IVIG.

I remember mine fluctuated but in hindsight only very subtly and insignificantly during the worst phase of myasthenia which lasted 3 years. At that time I didn´t even consider it was related to the other weakness. It was only later with almost 100% resolution of symptoms that much to my amazement that it too began to disappear over the course of a few months, and like I said earlier, reappear again during a flare up along with the other more usual myasthenic symptoms.

I think back to all the hearing specialists I have seen who told me I can hear very well (!) and not to avoid sounds - to basically just grin and bear it – I now know I would never go and sit out in scorching heat to exacerbate my DV, general and bulbar symptoms and so will I, in future, likewise never allow for a constant tsunami of loud sounds to reach my precious ear muscles during any flare up ever again! I will conscientiously protect them with the high quality filter musician´s earplugs at certain times where I think appropriate and on select days/time of day with greater muscle weakness.

PS. Yes, your weak cough may very much be a part of it – I do hope you have a neuro that knows about your symptoms and is competent in MG. I personally at least think your doctor needs a thorough evaluation on his skills related to fluctuating neurological muscle disorders!


Anacrusis