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Old 08-30-2013, 08:55 AM
Susanne C. Susanne C. is offline
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Join Date: Jul 2011
Location: Mid-Atlantic coast
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Susanne C. Susanne C. is offline
Member
 
Join Date: Jul 2011
Location: Mid-Atlantic coast
Posts: 721
10 yr Member
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To the OP- have the doctors identified this as hereditary neuropathy? It certainly sounds like it unless you are all diabetic. I have CMT type 2, advanced to where my arms and legs are pretty painful. I am on Gabapentin, don't really have any side effects, but I am also on time release morphine and oxycodone. I would be completely unable to function without them, but I have done well with them, although now the weakness is progressing to where I need a wheelchair for a few things.
You may find that narcotics allow you a higher level of functioning with fewer side effects. Good luck finding a doctor who understands pain management! Since there is no treatment permanent palliative care is fundamental to your quality of life.

Last edited by Susanne C.; 08-30-2013 at 11:05 AM.
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