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Member
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Join Date: Sep 2012
Location: Newtown, PA
Posts: 709
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Member
Join Date: Sep 2012
Location: Newtown, PA
Posts: 709
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Thanks everyone. I was beginning to think I was being irrational for expecting more. The resident wanted to send me to some specialist doctor that tried to help improve the quality of my life. I am not ready to settle yet. I feel I have not even begun the fight (treatment) yet. I just have to wait 3 more months and hope Dr Drachman takes me on.
Maurice, this is an excellent link for treatment options, giving the dosage and how to wean off the pregnisone. I knew the method they were using did not seem right. This really helps me since it looks like I am on my own until the new neuro appointment in early October. I did not follow the resident instruction of 15 mg every day and instead tried to mimic everyone's else past experiences. I am felling much better. The headaches, muscle and joint aches have subsided. Even the fatigue is a little better. I feel like I can hang in there for the new neuro and Dr Drachman. Before I did not even feel functional.
Thank again everyone, I do not know what I would do without this forum,
kathie
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