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Member
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Join Date: Sep 2012
Location: Newtown, PA
Posts: 709
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Member
Join Date: Sep 2012
Location: Newtown, PA
Posts: 709
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I have been diagnosed with MG. I have double vision, prisms really help. I also have a droopy eye lid, muscle weakness mostly in the legs, but the arms and face too. My antibodies are negative but my SFemg is positive. I have shortness of breath, it is much better now that I am on prednisone and mestinon. I have not had any pulmonary studies. But I often have the sensation when I sleep like my throat closes, I make a weird sound and then I wake up and it goes away. I need to follow up on that.
Were you on mestinon when they did the SFemg? Were you having a good (strong) day the day of the test? What muscles did they test?
I made sure when I did my SFemg that I had been off mestinon for a week, and the test was in the afternoon so my muscles were more fatigued. They tested my eyes which are very symptomatic.
kathie
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