I am so sorry you have CRPS. I want to welcome you to Neuro Talk. Here you will find friends that have the same condition. The medications you are on... if they help you and take the edge of, Don't feel bad using them. I have been taking some type of Narcotic, so I can walk without pain. After this many years, I do not feel any side effect at all.

"Living" with the condition I know is hard.Don't think too far in the future, but rather day to day, minute to minute. Holding down a job with CRPS, would challenge the bravest of people. I would employ all fields medicine, from Neurologists, physiotherapy, pain specialists and physiatrist. This last field of medicine is the type of doctor I go to. Physiatrist is different than an MD, or DO. In my case, she specializes in pain first, but treats the "whole" person.

I know one therapy that is being used for CRPS, Ketamine infusions. Ketamine has had some good outcomes for our military, where it was first used. Medical journals such as JAMA, report good results. For research this would be a start. Trying to find a facility that do these infusions is the hardest part. Tampa Bay General has a good reputation for it. Mayo clinic may be doing trials. Also there are a number of folks here who have had this therapy. If you post near to where you live, someone maybe able to help you find a location. I had Ketamine infusions in just a certain part of my body, and had extremely good results with it.

Keep hope alive. There have been remissions, or a great reduction of pain with new therapy. I had a home business, and worked around my treatments.. Maybe you could do something out of your home while you seek help.

No matter what direction you go, NT will be here to be supportive. I will keep you in my thoughts and prayers. ginnie