Welcome Gipper,
I was not able to find the post you referred to from '09 in the archives (
Search function), but you may be able to if you can recall any more keywords (search criteria).
Some forums here you might try for information/sharing/support are:
Children's Health (As this concerns your son)
Movement Disorders (There seem to be more threads/posts pertaining to ataxia here)
Neuromuscular (Some discussion here as well)
Best Wishes,
Doc