I was diagnosed in October of 2006, after eight years of misdiagnosis.
I am 50 y/o and had DBS June 22, 2010. I wish I could have talked the doctors into doing it much sooner! I had a great deal of apprehension and fear preceding the procedure. However, I got over that after considering my ability to enjoy watching my six grandkids grow up....for them, I would do anything.
The worst part of the procedure is being awake in the OR, but then you feel the miracle happening to your body and every bit of discomfort goes by the wayside!
It is a miracle and I would be happy to talk to you more about my experiences, if you would like....fowki@cox.net.