Quote:
Originally Posted by azcoyote
Hi, I am currently (as of Sept 2006) using Betaseron. Before that was one year of Avonex and then five years of Copaxone.
My problem is, each flare is worse. I had a 3-day IVSM/prednisone taper last Oct. and another one last week. I noticed improvement almost immediately after last week's SM (very weak legs before and could barely walk), so that is good. My hope is to keep walking with my rollator or forearm crutches for as long as possible.
My fear is that with all of this medicine, I am destroying my body in addition to the MS. I guess I go back and forth, like so many of you. Fear that I'm not doing enough, followed by fear that I'm getting way too medicated. Ach!
|
I hear you on that Mary Ann. That's what I was afraid of doing IVSM every 3 months for 3 days for the last 6 years. My body was starting to rebel against the steroids. So far, I haven't shown any bone density problems from all the steroids, but I am sure it will show up.
I couldn't tolerate Copaxone. I am hoping that I get some relief with whatever I am on right now in this clinical trial.