Hello! I don't have a firm diagnosis.. just something neuromuscular that does respond to IVIG.. without IVIG my pulmonary function tests go down, heart rate up, weak, droopy eyelids etc etc..

I had a sleep study done not too long ago- it showed something like 19 hypoapnea events, and then 9 other breathing events (cant remember what they called it).. my o2 sat went to 87% for a few seconds - they think it was artifact.. otherwise it never went below 92%.. they said my entire study was "normal" apart from my restless leg as soon as the lyrica was wearing off..

Did they talk to you about Bipap at night time with your results?

I think I have some nights where I hardly have any issues.... and then others where I wake up with a noticable headache (though I cant be for sure if its from neck pain, or IVIG or what the cause).

Good luck!