I was diagnosed with P.D in Sept. 2003 at 49 years old. I have been offered DBS surgery and turned it down twice in the past four years. My anxiety about the post surgery side effects such as speech, balance, depression, personality changes make me wonder if it is worth the risk. Also, the Dr's don't seem to be able to give any indications whether it will help to relieve the dystonia. If any of you who are dealing with dystonia have had DBS surgery I would like to hear from you. I need to make a decision soon before I deteriorate further. I am presently taking 8 sinemet 100/25 x day, 8 mgs requip x a day. These meds are spread out almost hourly to maintain a level that will prevent fluctuations. It has become very unpredictable, dystonia attacks are frequent and very debilitating. Running out of time, is DBS the right thing to do?