have you tried the Cpap? DOes it seem to make you feel better? When I was having an exacerbation a few months ago and I think my night breathing was pretty bad, i was SOOO exhausted in the day time.. fell asleep the second I sat down etc... but now am totally fine again as far as that goes..

the hypoapenic events I was curious about - my dr said it was all normal.. but do "normal" people have any of those events?

My PFT's are usually in the upper 80's since I started IVIG - which is quite a bit better than they were when I got admitted into the hospital. (I had scoliosis surgery as a kid, so the couple of times they have tested PFT's before i was "sick" they were bad.. so I think upper 80's is normal for me).

Hope your getting some relief.. are they going to start you on mestinon or something?