Member
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Join Date: Nov 2011
Posts: 576
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Member
Join Date: Nov 2011
Posts: 576
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Those numbers sound familiar (i dont' know where my sleep study paperwork is right now)... but I think I had a 4 or 6 on that scale that abnormal was above 12... It still freaks me out as I imagine a "normal" healthy person doens't have any events like that!
good luck with your apt! I hope they will let you try mestinon... I only do IVIG... without it I can't breathe, move etc... I was a mystery diagnosis and then I crashed about 2 years ago now.. ended up in the hospital for a week and thats when they started IVIG... and i've done it ever since.. but they still don't really have a firm diagnosis.. fun fun! :0
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