Hello, Hoppipolla.

Welcome to Neurotalk.

I am sorry to hear of your condition; I recognize that both the diagnosis and the experiences themselves must all be quite terrifying. Please take care of yourself as you need to. Don't be afraid to let your family know your needs.

How frequent are your attacks?
Did the ER doctor prescribe anything for you to take?
Do you already have a doctor who specializes in migraines treating you?

If you do not have a specialist, it would be good to look for one. Many family physicians, even many "regular" neurologists, do not have an exceptional preparation when it comes to migraines and especially the less common variants. There are meds... mostly a matter of figuring out what works best for you.

Hang in there. I hope others will come along who can provide better feedback. I only have the "regular" kind of migraines, and mostly wanted to say hello to you. I'm here though, if you want to talk. Let me know if I can help with anything like additional research, too.

waves